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'Comment Mania!' Contest: Saved by Grace

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Everyone has their story about the hilarious and humbling experience of raising children. Share yours by adding a quick comment at the bottom of this article; if we like your comment best, you could win a great prize!
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"Mimi, was it a cat?" Grace, 7, asks my mother, who's trying to describe the animal she just saw run across our back fence.

"No, no, Honey, it was a ..." and my mom's voice trails off in puzzlement.

"A bird!" Grace chimes in enthusiastically.

"No, it wasn't a bird," my mom answers, her forehead pursed in thought as I see her struggle to name something so simple that's so simply eluded her.

"Squirrel, Mimi? Was it a squirrel?" Grace says and I see my mom's face flood with relief.

"Yes, yes, it was a squirrel," she says smiling.

"Aww, Mimi, I missed it. Was it really cute?" Grace asks.

"Very," Mimi replies and goes on to describe its tail, how it must have been a baby because it wasn't too fluffy and was a little wobbly as it jumped to the grass. I'm lulled and comforted by the cadence of their squirrel tail conversation, relishing the simple victory that my mother just experienced thanks to Grace.

By delivering the word, Grace spared my mother an adult interruption, dispensing with the need for her daughter's rescue -- aid that she would have appreciated but would have also been embarrassed by.

My mother has Alzheimer's disease -- and with the having ironically comes a seemingly endless string of losses: loss of words, loss of memories, loss of recognition and worst of all, a loss of independence. Of all my mother's attributes, independence has always been the most fiercely and defensively guarded.

"Mama, what's that brown bird called that we saw the other day?" Grace asks, pulling me from my thoughts. I'm struck by how profoundly unchildlike her question seems, with its perfect timing and uncanny delivery. But at 7, she is incapable of contrivance, which makes her innocent query all the more profound in its reassurance to her grandmother, and to me, that everyone needs help remembering things now and then.

"Road runner," I say and I smile as they carry on their suburban wildlife conversation while I struggle to fight the tears welling up in my eyes.

At bedtime, Grace delivers another innocent question that's harder to answer, "Mama, is Mimi crazy?"

I push down a knee-jerk urge to reprimand her for using such an unkind word. Instead I ask what she means by "crazy."

"Well, she says things that don't make sense sometimes. And she asks me the same question over and over but I can tell it's not a joke," she replies.

We talked about Alzheimer's with Grace when my mother was first diagnosed so I remind her of the "disease that affects Mimi's brain" and how it's easy for her to be confused -- but how that's different than crazy.

After Grace is sleeping, I go downstairs and look up "crazy" in the dictionary. Webster's New World defines it as "unsound of mind; insane; foolish; not sensible" and I feel like crying again until I'm reminded of a children's book that my librarian friend recommended. I go online and order Wilfrid Gordon McDonald Partridge by Mem Fox and Julie Vivas.

When it arrives, I'm buoyed by this book about a boy named Wilfrid who lives next door to a retirement home. Hearing that his favorite resident has lost her memory, the boy asks the old folks what a memory is: "Something from long ago"; "Something that makes you laugh;" "Something warm;" Wilfrid ponders the answers, then gathers up memories of his own -- seashells collected last summer, a feathered puppet, a warm egg fresh from the hen -- to give her. In handling Wilfrid's memories, Nancy reclaims and shares some of her own.

The other day I hear Grace and my mom talking again.

"Mimi, see this picture of Chester? It was my mom and dad's dog before I was born but I sometimes think I remember him," she says, showing my mother some pictures in an old album.

"That's OK," my mother says. "Memories are funny like that."


How about you? How do you talk to your child about grown-up issues?

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'Comment Mania!' Contest: Saved by Grace

anag5
anag5 says:
August 25, 2008

Thank you for sharing this wonderful story with all of us. My aunt Fanny, my grandmas sister die of Alzaheimer's desease, a very cruel desease. Anyway I want to share something about my 12 year old daughter. My husband have Tourette's syndrom which is a disorder characterized by multiple motor and vocal tics. His Tourette's is not severe but is very noticeable when he have his tics. Anyway, one day when my daughter was 5 or 6 she noticed that something was wrong with her Dad, and asked him, Dad, why are you moving like that?, he said I have a tic and it is called Tourettes. We know how kids are they say things and they don't even know if they hurting sombody elses feelings, so she said, oh,ok, I thought you were dancing. I laghed, he did too, and we explained to her what exactly Tourettes syndrom is. Kids are really a blessing they can make you smile even if you are having the worse moment in your life.

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ferrari-johnson
August 22, 2008

Yes, they understand so much. 13 years ago when my oldest two were 5 and 2 1/2 my 19 brother passed away. I had always told them the truth about his cancer. When he passed all my 5 year old said was,"Is he in anymore pain mom?" to which I replied no. Then I re-explained how they wouldn't be able to hear his voice but could talk to him any time they felt like it. All they cared about was him being in pain and as soon as I was done my 5 yr old put his arms around my neck and said,"That's good and the angels will take care of him" It still makes me cry. My son went away to college this week and when he held me and kissed me goodbye he whispered,"Don't worry mom, my uncle will watch over me. I will be safe." Just tell them the truth and they will be their very best!

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samuelisaac16
August 21, 2008

My own grandmother had alzheimers and her mother before her. I often wonder if at some point in time my own daughter will lose her Nana to this awful disease also. By educating our children/youth instead of sheltering them we can create abilities to understand differences instead of fearing them. Also I belive we create a burning desire to heal, cure and prevent the diseases that have intimidated and frightened mankind for so long. We no longer hide our disabilities we educate to find ways to overcome them.

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